Collaboration with Academia

PReSTaR acts as an international academic research service to the paediatric rheumatology community for the implementation of non-profit trials, disease registries and other research initiatives led by investigators (consensus conferences, cross-cultural adaptations of questionnaires, research training and courses).
Currently, PReSTaR is coordinating the following projects:

SMART-JIA

Ongoing

Trial of Sequential Medications AfteR TNF failure in Juvenile Idiopathic Arthritis

International study comparing treatment strategies for children with Juvenile Idiopathic Arthritis who have not responded adequately to initial TNF inhibitor therapy.

Granting Agency: Patient-Centered Outcomes Research Institute

EUROFEVER

Recruiting

Registry of patients (children and adults) with auto-inflammatory diseases.

The EuroFever project was initially promoted in 2008 by the work group of autoinflammatory diseases of the Paediatric Rheumatology European Society (PRES) and was supported by the Executive Agency for Health and Consumers (EAHC), with the main objective of creating a registry of autoinflammatory diseases.

128 global sites 6211 participants

HyperPED-COVID

Recruiting

International registry of young and adult patients with COVID-19 related hyper-inflammation.

A joined PReS, ESID, ISSAID, ERN-RITA network’s effort has been started with the aim to buid a registry of children and young adults who have developed serious inflammatory condition in temporal association with COVID-19 in the community.

55 global sites 1011 participants

KIWI

Recruiting

International longitudinal registry of patients with Kawasaki Disease.

Retrospective-prospective, observational, descriptive study of patients with Kawasaki disease for the comparison and performance of IVIg resistance scores in a multi-centric European and North Indian cohort of KD. The project is in the process of evolving into an international longitudinal registry for patients with Kawasaki Disease.

19 global sites 759 participants

DAISY

Analysis

International study investigating sensitivity and predictive value of ultrasound and a multi-biomarker panel.

Applicability of standardized ultrasound examination to estimate disease activity in combination with JADAS and inflammation markers in JIA patients.

10 global sites 104 participants

Future Studies

In planning

PReSTaR is committed to continuously expanding its research activities. We are currently planning innovative new clinical studies in the following areas:

  • Optimization of biologic therapies in paediatric rheumatic diseases
  • Predictive biomarkers for treatment response
  • Personalized therapeutic approaches in paediatric autoimmune diseases

Are you a center interested in participating in our future studies or do you have ideas for collaborations? Contact us to explore potential research partnerships.